Day 3 on the new drug....blah!
Remember Huey Lewis and the News? Well, I WANT A NEW DRUG! One that won't make me ache all over.....
I was doing great on Saturday, the day after my first Taxol treatment. I was peppy, feeling good. My dad and I went out for coffee in the morning, after stopping at the hospital for my shot of Neulasta (the white count booster I get the day after treatment, to bring my count up faster so I can get chemo every other week instead of waiting 2 weeks for my body to bring up the white count on its own....make sense?) At the coffee shop, I ran into my friend Maya and her husband Michael and had a nice chat with them. I was so proud that I was up and about, feeling good and looking "not too shabby".
My mom and I shopped all of yesterday afternoon. It was great to be out and also to make progress on my Christmas shopping. Several times, she said "Let's get you home" but I insisted we keep going. I wasn't sure when or if the Taxol would hit me, and I wanted to take advantage of my energy. And, I thought if I tired myself out enough I would most likely be able to sleep in spite of the steroids. (I did sleep well, by the way.)
After dinner I started feeling a little achey, first in my neck and then my chest around my port. I thought it was the port but it kept spreading. The backs of my arms were next. I thought that was because of the Neulasta shot but then I realized it was in BOTH arms. The shot goes in one arm.
At that point, when I complained to John yet another time about the pains (I had been giving him a play-by-play all evening, I'm sure driving him crazy because he was trying to watch the Nebraska football game), he suggested I take some Advil or Tylenol before I went to bed. So I did and fell asleep pretty quickly.
When I woke up, around 10:30 this morning, I was achey all over. My body felt heavy. And my eyes were watering, like fountains. I wasn't crying, really, it was weird.
Everyone else was awake and I could hear them running around downstairs, getting the girls ready for Sunday School. Meanwhile, I needed help to get out of bed, and I was hungry, and no one checked in on me! Boo hoo hoo! That's what I get for making a big deal about being fine and wanting to do things myself!
Eventually, I dragged myself downstairs and heated up some spaghetti. It was wonderful. That, a cup of tea, and a shower really brought me back to life this morning.
So there you have it. That's how I'm doing. I'm achey and a big whiner-baby (the girls' new term for each other), but I am feeling better as the day goes on.
If this is the pattern for the next treatment, I'll be prepared. I'll do all the things I need to do on Saturday and expect to be a slug on Sunday. I don't like it, but at least I won't be surprised. And on the bright side, I don't have the queasy stomach like with the other drug. Here's to a more exciting menu from now on! No more living on crackers....
I was doing great on Saturday, the day after my first Taxol treatment. I was peppy, feeling good. My dad and I went out for coffee in the morning, after stopping at the hospital for my shot of Neulasta (the white count booster I get the day after treatment, to bring my count up faster so I can get chemo every other week instead of waiting 2 weeks for my body to bring up the white count on its own....make sense?) At the coffee shop, I ran into my friend Maya and her husband Michael and had a nice chat with them. I was so proud that I was up and about, feeling good and looking "not too shabby".
My mom and I shopped all of yesterday afternoon. It was great to be out and also to make progress on my Christmas shopping. Several times, she said "Let's get you home" but I insisted we keep going. I wasn't sure when or if the Taxol would hit me, and I wanted to take advantage of my energy. And, I thought if I tired myself out enough I would most likely be able to sleep in spite of the steroids. (I did sleep well, by the way.)
After dinner I started feeling a little achey, first in my neck and then my chest around my port. I thought it was the port but it kept spreading. The backs of my arms were next. I thought that was because of the Neulasta shot but then I realized it was in BOTH arms. The shot goes in one arm.
At that point, when I complained to John yet another time about the pains (I had been giving him a play-by-play all evening, I'm sure driving him crazy because he was trying to watch the Nebraska football game), he suggested I take some Advil or Tylenol before I went to bed. So I did and fell asleep pretty quickly.
When I woke up, around 10:30 this morning, I was achey all over. My body felt heavy. And my eyes were watering, like fountains. I wasn't crying, really, it was weird.
Everyone else was awake and I could hear them running around downstairs, getting the girls ready for Sunday School. Meanwhile, I needed help to get out of bed, and I was hungry, and no one checked in on me! Boo hoo hoo! That's what I get for making a big deal about being fine and wanting to do things myself!
Eventually, I dragged myself downstairs and heated up some spaghetti. It was wonderful. That, a cup of tea, and a shower really brought me back to life this morning.
So there you have it. That's how I'm doing. I'm achey and a big whiner-baby (the girls' new term for each other), but I am feeling better as the day goes on.
If this is the pattern for the next treatment, I'll be prepared. I'll do all the things I need to do on Saturday and expect to be a slug on Sunday. I don't like it, but at least I won't be surprised. And on the bright side, I don't have the queasy stomach like with the other drug. Here's to a more exciting menu from now on! No more living on crackers....
posted by KT @ 2:00 PM
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